Author Archives: Susan Conradi Toomey

Palm Trees, Fun, Sun and Lacrosse

Denver Summit Lacrosse club heads to Palm Springs, California http://yourhub.denverpost.com/denver/palm-trees-fun-sun-and-lacrosse/NMf3dWxUGr9RFNpTGvzGnN-ugc

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Drug Treatments on the Horizon – Clinical Drug Studies in NF

Article reviewing the clinical trials of Sirolimus in NF1. Sirolimus clinical trials in NF1

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Drug Treatments on the Horizon – Clinical Drug Studies in NF

Article reviewing 2 drug trials underway in the treatment of NF1 and NF2. Colorado CTF Newsletter Fall 2009 – Page 4

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Schwannomatosis

A brief summary on schwannomatosis (on page 4) – a recently defined sub-type of neurofibromatosis. http://www.ctf.org/pdf/co/colorado-fall-06.pdf

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PGD (preimplantation genetic diagnosis) in NF

Reproductive Choices in NF http://www.ctf.org/pdf/co/colorado-fall-05.pdf

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Outcome of Sturge-Weber syndrome in 52 adults

Article reviewing data of 52 adults with Sturge-Weber syndrome. http://www.ncbi.nlm.nih.gov/pubmed/7645596

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